TY - GEN
T1 - Progressive Release of Informational Materials for People Living with Dementia and Their Informal Carers
AU - Turner, Jonathan
AU - O’Neill, Siobhán
AU - Berry, Damon
AU - Doyle, Julie
AU - Kambampati, Harish
AU - Moran, Orla
AU - Smith, Suzanne
AU - Wilson, Michael
AU - O’Sullivan, Dympna
N1 - Publisher Copyright:
© 2025 The Authors.
PY - 2025/6/26
Y1 - 2025/6/26
N2 - We describe a process for selecting informational material for people living with dementia that is most appropriate for their stage of dementia. This material provides information on the disease, on ways of living with the disease, and on activities that may delay the progression of the disease, with a view to maintaining an individual’s independent living at home. Informational material is suggested according to both an individual’s overall clinical disease progression and progression along seven cognitive domain axes that contribute to the overall progression, for example ‘working memory’ performance or ‘attention’, with scores for these axes being derived from clinical judgement, from fixed and wearable sensors, or from performance when interacting with devices. Material is rated according to relevance to overall disease progression and relevance to each of the seven axes. For example, the Alzheimer Society of Ireland ‘Living Day To Day’ document is most relevant to those diagnosed with early dementia onwards, but may also have useful information for those without a dementia diagnosis but are experiencing problems with their working memory or attention.
AB - We describe a process for selecting informational material for people living with dementia that is most appropriate for their stage of dementia. This material provides information on the disease, on ways of living with the disease, and on activities that may delay the progression of the disease, with a view to maintaining an individual’s independent living at home. Informational material is suggested according to both an individual’s overall clinical disease progression and progression along seven cognitive domain axes that contribute to the overall progression, for example ‘working memory’ performance or ‘attention’, with scores for these axes being derived from clinical judgement, from fixed and wearable sensors, or from performance when interacting with devices. Material is rated according to relevance to overall disease progression and relevance to each of the seven axes. For example, the Alzheimer Society of Ireland ‘Living Day To Day’ document is most relevant to those diagnosed with early dementia onwards, but may also have useful information for those without a dementia diagnosis but are experiencing problems with their working memory or attention.
KW - Dementia
KW - Document selection
KW - People Living with Dementia (PLwD)
KW - Personalised information
UR - https://www.scopus.com/pages/publications/105010176863
UR - https://arrow.tudublin.ie/teapotro/3/
U2 - 10.3233/SHTI250676
DO - 10.3233/SHTI250676
M3 - Conference contribution
C2 - 40588884
T3 - Studies in Health Technology and Informatics
SP - 76
EP - 80
BT - Global Healthcare Transformation in the Era of Artificial Intelligence and Informatics
A2 - Mantas, John
A2 - Hasman, Arie
A2 - Gallos, Parisis
A2 - Zoulias, Emmanouil
A2 - Karitis, Konstantinos
PB - IOS Press BV
T2 - 23rd Annual International Conference on Informatics, Management, and Technology in Healthcare, ICIMTH 2025
Y2 - 4 July 2025 through 6 July 2025
ER -