Designing Self-management for and with Persons Living with Dementia

Dympna O’Sullivan, Michael Wilson, Damon Berry, Orla Moran, Siobhán O’Neill, Ciaran Nugent, Jonathan Turner, Julie Doyle

Research output: Chapter in Book/Report/Conference proceedingConference contributionpeer-review

Abstract

Promoting high quality of life for persons living with dementia has emerged as a central goal in global public health agendas. The emphasis has shifted from extending life to actively enhancing overall well-being by postponing or preventing additional disability. This represents a departure from traditional medical perspectives on dementia to a more socially-oriented approach, placing a strong focus on wellbeing. In parallel, the concept of self-management for people with living dementia has emerged, where this is a person-centred approach in which the individual is empowered and has ownership over the management of their life and condition. Practice recommendations for person-centered care have been recommended, which emphasize the importance of knowing and understanding the person living with dementia such that individualized choice and dignity are supported. There is also a need to include informal carers (family members or friends) in designing collaborative care planning, while balancing empowerment and active engagement for the person with living dementia in self-management with carer support. This paper describes our approach to co-designing assistive technologies for care planning with and for persons living with dementia and their caregivers.

Original languageEnglish
Title of host publicationComputers Helping People with Special Needs - 19th International Conference, ICCHP 2024, Proceedings
EditorsKlaus Miesenberger, Petr Peňáz, Makato Kobayashi
PublisherSpringer Science and Business Media Deutschland GmbH
Pages179-185
Number of pages7
ISBN (Print)9783031628481
DOIs
Publication statusPublished - 2024
Event19th International Conference on Computers Helping People with Special Needs, ICCHP 2024 - Linz, Austria
Duration: 8 Jul 202412 Jul 2024

Publication series

NameLecture Notes in Computer Science (including subseries Lecture Notes in Artificial Intelligence and Lecture Notes in Bioinformatics)
Volume14751 LNCS
ISSN (Print)0302-9743
ISSN (Electronic)1611-3349

Conference

Conference19th International Conference on Computers Helping People with Special Needs, ICCHP 2024
Country/TerritoryAustria
CityLinz
Period8/07/2412/07/24

Keywords

  • Codesign
  • Dementia
  • Self-Management Technology

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