@inproceedings{6f3ab8798c3e450c996988431b9cb650,
title = "Data and Process Harmonisation of MultiNational, Multi-Site Research Data",
abstract = "To achieve a single fully harmonised research data set suitable for analysis from data collected at multiple sites requires not only semantic integration of collection concepts and convergence onto single collection units, but harmonisation of data collection processes. We describe our experience of identifying harmonisation challenges in the Precision ALS project, with particular focus on process alignment challenges in a multi-site multi-national research data collection project.",
keywords = "Amyotrophic Lateral Sclerosis, Harmonisation, process alignment",
author = "Jonathan Turner and Sin{\'e}ad Impey and Frances Gibbons and Anthony Bolger and Gaye Stephens and Lucy Hederman and Ramisa Hamed and Ciara O'Meara and \{de la Varga\}, Ferran and John Kommala and Matthew Nicholson and Daniel Farrell and Miriam Galvin and Mark Heverin and \{Mac Domhnaill\}, {\'E}anna and Robert McFarlane and Dara Meldrum and Deirdre Murray and Orla Hardiman",
note = "Publisher Copyright: {\textcopyright} 2024 The Authors.; 34th Medical Informatics Europe Conference, MIE 2024 ; Conference date: 25-08-2024 Through 29-08-2024",
year = "2024",
month = aug,
day = "22",
doi = "10.3233/SHTI240675",
language = "English",
series = "Studies in Health Technology and Informatics",
publisher = "IOS Press BV",
pages = "1411--1412",
editor = "John Mantas and Arie Hasman and George Demiris and Kaija Saranto and Michael Marschollek and Arvanitis, \{Theodoros N.\} and Ivana Ognjanovic and Arriel Benis and Parisis Gallos and Emmanouil Zoulias and Elisavet Andrikopoulou",
booktitle = "Digital Health and Informatics Innovations for Sustainable Health Care Systems - Proceedings of MIE 2024",
address = "Netherlands",
}